Kason : Looking back at the last 4 years (7.17.09- 7.17.13)

I am sitting here and looking back over baby pictures and the 4 years that I have been blessed with my sweet boy!! I remember the day that I took the test for him and it came positive..  I was scared out of my mind on how I was going to love another child. I was very happy despite a few people in my life telling me I was messing up ( I was 20 at the time) . My hubs ( at the time fiance) and I where going through a rough time during the time so the pregnancy was already going rough because of the emotions...  I fought through weeks of bleeding, being admitted into the hospital and the constant pang of contractions managed to make it to 36 weeks.. Our son was born right before the shift change and all was wonderful... Breastfeeding was hard and I was not able to nurse on one breast.. I was left again alone with a newborn while the hubs went to work out of city..  Alone I went on .. One day his face broke out in a rash and thus began the path we have been on for the past three and a half years. I have been in a constant tizzy of doctors appointments and constant stress load that would make anyone else loose their marbles.. I would wake up to bloody sheet and a screaming baby most nights.. I feel sick to my stomach just thinking of his screams.. After months of begging we finally got specialists.. But again it was creams and steroids and plenty of heartbreak when that didn't work and his face would again turn to a bloody and raw nightmare.. As we neared his first birthday it seemed to get better... then one big flare knocked him back down .. Again his skin inflamed and bleeding.. My prayer however came true when his eczema went away just enough to take his birthday pictures!! We tried to feed him cake.. and as usual he didnt eat much.. Weeks later I am holding him and rocking him.. He starts to cry and then turns blue... seizing on my lap.. I scream out for him to come back as his lips get darker and darker... I finally get him to breath... We rush him to the hospital.. I know i have told this story a million times.. each time I can feel my heart do the same thing it did when he first had the attack... his body was giving up.. my son was dying.. my heart.. my soul was sick for him.. Looking back i should have knew.. I should have taken him to a different doctor.. Maybe he would not have suffered soo much..  We get past this phase and move into a year of bliss.. Nothing and I mean nothing happens... Infections slowed down and life was normal.... I got my wish on his second birthday.. just for one day of perfect skin... I was able to hug him without him crying and kiss his sweet cheeks without the fear of infection or making him hurt...  We went through that year like nothing had happened.. UNTIL..... His third birthday brought more breakouts and Hives , confused we entered through another phase of complete Hell... It wasn't until this year ( 2013) that what was happening and what had been happening came to light... We finally got him tested for food allergies... and have a new battle since he was diagnosed.. Lots of happy moments clouded by sadness.. hard work and sleepless nights...


Although not everything was Bad... there is moments ( and pictures ) of good times and moments of bliss... Moments that can make the darkest ones seem like nothing.. The videos of him laughing even though his face must have hurt badly... The feeling of being alone and another mother with a child with the same condition writes you and tells you how strong you are and how strong he is and that this too shall pass..  The moments that you watch him blow out his candles , more each year and know that you are going to do everything to protect them.. I know one day ill be looking at a man instead of a little boy... Ill hold a hand bigger than my own....

Most times I wish I would have wrote a letter on the day of their birthdays and present them to them when they become parents.. But ill start now..



My dearest Kason,

My sweet boy know that I love you so very much.. As I am sitting here I think of how precious you are to me.. You know how strong you are? I am amazed by you little boy.. I am amazed by the big boy you are becoming.. I am so blessed to be your mommy!! God put you right where you belong.. Your father and I are so thankful for every precious moment we have had with you.. As you turn 4 I am going to cry a little.. Because you are not going to be little anymore.. You have left the baby stage and moved into boyhood.  You will be able to go to school next year.. and well that is really scary because it seems like not so long ago they handed me a bread loaf sized bundle with a tiny baby in it.. Now my wish for you is that you will grow big and strong.. That you love with no price and that you Know that not just me and daddy love you , but your sister and little brother as well as the Great I Am.. your heavenly Father above!!! He loves you more than you know!!! I pray that you will know his love in the darkest hours... Keep your head up and know that I am always a step behind you... Now while you nap ill watch more videos of you and feel even more blessed becuase when you wake up I know ill have a dozen more to add soon!!!

Love you with all of my heart
Mommy

Food allergies part 2: Path to wellness

It's been a few weeks since my first post about our path to finding our about Kasons food allergies and how we are going to treat them.. We figured that Kason had several food allergies after getting several bouts of hives and eczema when he was a baby. Why they didn't test him till now makes me wonder why ? Why would they just treat the after effect of a breakout instead of investigate it. We left most of Kason's medical records that we copied with the speech therapist and I looked through them as well.. I noticed after reading through them that between the ages of 6 months to a year , Kason's health took a turn.. He didn't gain weight and he barely gained any height.. Why didn't they notice that? Why did we have to go through multiple infections and breakouts without further testing? Now I feel like I have been cheated out of what could have been a normal babyhood for Kason... He could have had clear skin and been able to smile when his mommy and daddy played and it would not have hurt. Now looking back his doctors never tried... They just gave him medicine to comfort him..

We finally did get into the doctors office and scheduled with an allergist and made sure that we had the options opened for us as we have never had them opened before. At first his pediatrician was talking immunotherapy. The thought of weakening my son's immune system made me mad. Why would I weaken what is protecting my son from getting another infection. The second option was even worse ( in my opinion) . We looked into allergy doctors and found one that would suit him to tailor to his needs.. While I am exited we are getting this far, I am also skeptical.. What if he never grows out of theses allergies? What will we have to do as far as diet? What is the next step for him? I spent the better part of three weeks after the original RAST. Test to figure out what we can do as far as food... I am already shocked with things I didn't know.. I was shocked to know there was so much out there that is marked hypo allergenic and really it isnt.

Well here goes to the two week wait!! I am ready to get some answers!!